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"No disease is rare when it affects someone you love"

National Organisation
for Rare Diseases


SMILE…about our Team


Evie Smith
SMILE Case Manager

Evie has been a key member of the SMILE team since the very early days of the charity and is now SMILE's Case Manager, a position that has been created to help the SMILE families with accessing necessary resources. Evie's role also includes raising community awareness of rare childhood disease as well as managing our Ambassador Program. She has a Bachelor of Arts from the University of NSW and a Diploma in Health Counselling from the Medical Registrar of Australia.

"I feel privileged to have witnessed and been a part of SMILE'S growth and expansion. I am very excited to be SMILE'S first Case Manager and hope to make a real difference in the lives of families whose children have rare diseases."