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molecule

"No disease is rare when it affects someone you love"

National Organisation
for Rare Diseases

 

SMILE...about our Patron

Frazer

 

Professor Ian Frazer

Professor Ian Frazer was honoured as Australian of the Year in 2006 for his groundbreaking discovery of the cervical cancer vaccine. He is the Chief Executive Officer and Research Director Translational Research Institute and is on the Board of the Queensland Cancer Fund, and is Vice President of the Cancer Council Australia. He advises the WHO on papillomavirus vaccines and has sat on various committees of the National Health and Medical Research Council of Australia continuously over the last 15 years.

Trained as a renal physician and clinical immunologist in Edinburgh, Professor Frazer emigrated to Melbourne in 1981 to continue his clinical training and to pursue studies in viral immunology and autoimmunity at the Walter and Eliza Hall institute of Medical Research. In 1985, he moved to Brisbane where he took up a teaching post with the University of Queensland. Professor Frazer is a strong advocate of the SMILE Foundation and has volunteered his time on many occasions to speak at SMILE Functions.

 

SMILE... about our Ambassadors

Elle

 

Elle Macpherson
Global Ambassador

Supermodel, actor, businesswoman and mother of two, Elle Macpherson embodies the spirit of the SMILE Foundation, combining creativity, business acumen and compassion. She is one of the most recognisable faces in the world, appearing on innumerable magazine covers, starring alongside Hollywood’s finest in films such as Sirens, The Edge and Batman & Robin, and appearing on NBC sitcom Friends. Her lingerie collection Elle Macpherson Intimates is a leading international brand. Elle is committed to improving the health of children. In addition to her role as SMILE Ambassador, she has also been Ambassador for UNICEF UK’s Baby Friendly Initiative (2005) which helps parents make informed choices about how they feed and care for their babies. Although she currently resides in London, Elle is a strong supporter of the SMILE Foundation both speaking at functions and visiting SMILE families whose children suffer from rare diseases, when in Australia.

“Our greatest desire as parents is that our children grow to be healthy. Parents of children with rare diseases want the same things but they are forced to confront the extreme challenges of caring for their children, unsupported. The SMILE Foundation recognises the vital role of medical research and direct financial assistance to families in extending and improving the lives of these children and their families.”

 

Joh

 

Joh Bailey

As one of Australia's most respected and dedicated hair talents, Joh Bailey's name has become synonymous with not only beautiful hair but with glamour and style. His dedication to his craft as well as his clientele has seen his name rise to iconic status throughout the country ensuring his longevity as Australia's most loved stylist. Joh and his salons have become an institution in the Sydney scene since he first opened up for business in Double Bay in 1985. His commitment to the SMILE Foundation and philanthropy in general is evident by his desire and willingness to not only lend his name to charity but to get involved on every level. Joh’s business success and caring nature have enabled him to support a number of charities, including the SMILE Foundation.

I believe wholeheartedly in the concept of giving, especially where children are concerned and I am proud to be a SMILE Ambassador."

 

Kidron

 

Ilan Kidron

An ARIA nominated singer, musician and screen composer, Ilan Kidron’s star has risen dramatically in the last three years as front man of electro dance music band “The Potbelleez.” Growing up in a musical household in Sydney, Ilan picked up his first guitar at 5 years old and hasn’t stopped strumming since. Over the years, he also studied flute and piano and has now finetuned his extensive repertoire to include cabaret, jazz, classical ensemble work, blues, electro, dance and rock. He has also acted in short films, TV commercials and TV presenting. He recently opened for international act Usher to critical acclaim.

When approached to be an Ambassador for the SMILE Foundation, Ilan’s response was “I found myself immediately wanting to be involved with SMILE. The children are so brave and creative and are able to retain a great sense of humour despite their circumstances. I am proud to contribute as an Ambassador for such a worthy cause.

 

Adam

 

Adam Williams

Adam Williams’ versatility as an artistic director, choreographer and performer has seen him work extensively throughout the entertainment industry both locally and abroad. With a wealth of experience in the world of commercial dance, fashion and musical theatre, Adam is well respected as an innovative leader in his chosen field. Adam was a regular on the TV hit, ‘So You Think You Can Dance’ and has worked with the likes of Kylie Minogue, Tom Jones, Delta Goodrem and Natalie Bassingthwaighte, as well as performing on stage in productions including Titantic – The Musical, Saturday Night Fever and Chicago.

I’ve joined the SMILE Foundation as an Ambassador because I appreciate their hard work and commitment to the children and families suffering from rare childhood diseases. I recognise the vital importance of an organisation that serves as an address where these families can turn to.

 

Tracy

 

Tracy Mann

Award winning actress and Logie winner, Tracy Mann has been a familiar face on our stages and screens for over 30 years. Amongst her many roles, she recently starred in the acclaimed Australian film, Hating Alison Ashley, for which she received an AFI nomination for Best Supporting Actress. Tracy brings an abundance of enthusiasm to the SMILE team and is always willing to get involved in different capacities.

"I was struck with the SMILE team’s genuine desire to make a difference in an area which is chronically underfunded. The daily challenges of families, and many single parents, coping with a child with a rare disease is unfathomable and unending. Research, family support, networking and access to information is vital. The SMILE Foundation is central to this and deserving of your generosity."

 

Lisa

 

Lisa Forrest

Lisa Forrest has been a household name for over thirty years. As a teenager she represented Australia in swimming. Lisa captained the women’s swim team to the Olympic Games in Moscow in 1980 and then won gold medals in the 100m and 200m backstroke at the Brisbane Commonwealth Games in 1982. Lisa was the first high-profile female athlete to successfully move behind the microphone. She has worked in television and radio and now is most often heard on ABC Radio 702. Lisa is also the author of four novels, the most recent ‘Boycott’, a non-fiction account of the controversial lead up to the Moscow Olympic Games.

Her greatest achievement is her son Dexter. Lisa was drawn to the SMILE Foundation’s commitment to the health challenges that face Dexter’s generation (and their families) and looks forward to working closely with the Foundation to achieve its goals.

 

Charlotte Dawson

SMILE’S newest Ambassador, Charlotte Dawson is a television presenter, columnist, fashion & beauty expert, inspirational speaker and fabulous MC. Charlotte contributes as a freelance writer and commentator across all forms of media in Australia and New Zealand and is the well-known out-spoken and sometimes controversial judge on Foxtel’s ratings winner, Australia’s Next Top Model for the past 5 series.

She is also a regular guest on Channel 7’s Sunrise and the Morning Show. Her editorial positions have included Fashion and Beauty Director of Woman’s Day Magazine and Style Director at New Idea. Charlotte published her autobiography ‘Charlotte’s Secrets (Penguin Books) in 2004. Charlotte is a wonderful addition to the SMILE team.

 

Cheri

Cheri Ochnio

Cheri Ochnio is the mother of 2 beautiful daughters, Chloe 12 and Jade 10 years of age. Jade suffers from a rare form of muscular dystrophy and was in fact the first child to be diagnosed in Australia. Cheri worked as SMILE’S Family Relief Program Advisor for 2 years and was instrumental in establishing SMILE’S Family Relief Program. Cheri also provided emotional support to many families who often had nowhere else to turn to. Currently Cheri works in a Special needs school with children with Autism.

Cheri continues to be a wonderful advocate for the SMILE Foundation as she understands firsthand the struggles facing families whose children suffer from rare diseases.

"I am incredibly honoured to be an Ambassador for the SMILE Foundation as they offer financial and emotional support to families who have nowhere else to turn. These families, who have so much to manage in keeping their children well and happy, are rarely known as they just get on with living. Thank goodness SMILE is there to help ease the strain"

 

Belinda

 

Belinda Barbagallo

Mother of 3 girls, Belinda Barbagallo joined the SMILE Foundation team as an Ambassador after her nephew, Johnnie Sussanna was diagnosed with a rare lung condition at birth and was not expected to live to see his first birthday. It was through Belinda's tireless efforts that the Federal Government agreed to make a one-off Act of Grace payment so Johnnie could be flown to the US for lifesaving treatment. Johnnie lived ten full and mostly healthy years until he sadly passed away at the age of 10.

The SMILE Foundation has been a blessing for my family as they understand and share in the knowledge that there is nothing more distressing than a child in pain. I am sincerely proud to be involved with SMILE and its wonderful, vital work.