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"No disease is rare when it affects someone you love"

National Organisation
for Rare Diseases

 

 

ABC News 24, Breakfast Rare Disease Day clip -
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Bayside Star - 23 January 2013
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Bayside Star - 16 January 2013
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Interview on Brisbane radio station 96.5 about
baby George Kruger
- 17 January 2013
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The Daily Telegraph - 2nd December 2012
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Chiswick PR Report - 4th June 2012
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Wentworth Courier - 17th May 2012
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The Lancet - 5th May 2012
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Win Wagga - Thursday 23 March 2012
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Win Canberra - Thursday 23 March 2012
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The Daily Advertiser - 22nd March 2012
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Wentworth Courier - 4th March 2012
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Health Reporter - 23rd February 2012
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The Australian Jewish News - 10th February 2012
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Blacktown City Sun - 23rd January 2012
$1000 grant from SMILE

Blacktown City Sun

A CHARITY helped a Doonside family (pictured) meet one of the most challenging times of their lives.

Three-year-old Mitchell Gorman who suffers from combined immunodeficiency recently received a $1000 grant from SMILE Foundation.

He has already undergone a bone marrow transplant and a heart operation, which caused him to have a stroke.

To assist in his recovery, his mother, Katrina had to move from Brisbane to Sydney to find a hospital for his needs.

Ms Gorman's social worker at The Children's Hospital in Westmead put her in touch with the foundation and she applied for a grant to meet her mounting living expenses and to purchase a special pram for Mitchell.

"The grant has been a lifesaver," she said.

SMILE Foundation provides grants to families in need to help cover medical expenses and other costs of raising a child with a rare disease.

Foundation CEO Lyndall Beville said reaching 500 families showed the generosity of its donors.

 

East Torrens Messenger - 21st September 2011
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Goulburn Post - 21st September 2011
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Border Mail - 19th September 2011
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Weekend Today Show - 18th September 2011
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AAP - 17th September 2011
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Coffs Coast Advocate - 17th September 2011
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Nine MSN - 17th September 2011
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Toowoomba News - 17th September 2011
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Channel 9 News - 17th September 2011
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WIN Canberra - 15th September 2011
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ABC Riverina Breakfast - 14th September 2011
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Daily Advertiser Online - 14th September 2011
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ABC Riverina Facebook Page - 14th September 2011
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WIN News Online - 14th September 2011
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Daily Advertiser - 14th September 2011
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WIN Wagga Wagga - 13th September 2011
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BACKPAGE - 13th September 2011
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2WG Wagga - 13th September 2011
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WIN Wagga Wagga - 6th September 2011
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Ninemsn - 5th September 2011
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Australian Associated Press online - 5th September 2011
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Australia News - 5th September 2011
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Southern Cross Ten - 5th September 2011
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Prime Wagga Wagga - 2nd September 2011
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WIN Wagga Wagga - 2nd September 2011
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Esperance Express - 2nd September 2011
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Port Lincoln Times - 1st September 2011
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Eastern Riverina Chronicle - 31st August 2011
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Joondalup Community News - 30th August 2011
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Daily Advertiser - 27th August 2011
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Fremantle Cockburn Gazette - 23rd August 2011
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Pilbara Echo - 20th August 2011
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Pilbara Echo online - 20th August 2011
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6PR Perth Radio - 19th August 2011
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2GB Radio - 19th August 2011
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Goulburn Post - 19th August 2011
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Pilbara News - 17th August 2011
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4BC Radio Carnarvon, WA - 13th August 2011
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Broome radio - 8th August 2011
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Kimberley Echo clip, Kimberley - 4th August 2011
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Eastern Riverina Chronicle - 3rd August 2011
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The Sun Newspaper, Darwin - 3rd August 2011
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Channel 9, Darwin - 27th July 2011
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Mt Isa North West Star - 20th July 2011
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Mt Isa North West Star Editorial - 20th July 2011
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The Advertiser - 20th July 2011
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4CA radio - 14th July 2011
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Cairns Sun - 13th July 2011
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Maryborough Herald - 13th July 2011
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Rockhampton Morning Bulletin - 11th July 2011
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Rockhampton Morning Bulletin online - 11th July 2011
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Rockhampton Morning Bulletin more - 11th July 2011
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Fraser Coast Chronicle - 6th July 2011
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Courier Mail Online - 5th July 2011
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4BC Radio Interview - 3rd July 2011
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Barrier Daily Truth - 1st July 2011
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Sunraysia Daily - 1st July 2011
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Sunshine Coast Daily - 1st July 2011
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AAP - 30th June 2011
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Adelaide Now - 30th June 2011
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Australianews.com - 30th June 2011
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Courier Mail - 30th June 2011
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Daily Telegraph - 30th June 2011
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Herald Sun - 30th June 2011
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news.com - 30th June 2011
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Nine MSN - 30th June 2011
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Perth now - 30th June 2011
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Radio coverage - 30th June 2011
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The Australian - 30th June 2011
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Cycle Nation - 30h June 2011
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Sky News Interview - 30h June 2011
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ABC News Interview - 30h June 2011
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Wentworth Courier - 26h June 2011
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Today Program - Channel 9 Interview - 26 June 2011

Knox Thistle Magazine - June 2011
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Sponsorshipmag.com - 17th May 2011
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Sponsorshipnews.com.au - 5th May 2011
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Sydney Gala Dinner - Alan Jones on 2GB - 18th March 2011

Sydney Gala Dinner - 17th March 2011
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International Rare Disease Day (IRDD) - Channel 9 Interview - 24th February 2011

International Rare Disease Day (IRDD) Cocktail Reception - 24th February 2011
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Grafton to Inverell Team Launch - SBS Interview